Links

This section provides links to organisations likely to be of interest to researchers or healthcare professionals working in neuro-oncology and not included in other parts of our website. We specifically do not include patient organisations, of which there are very many working within this sector.  We regret that BNOS is not able to include content or links relating to individual members’ activities, websites or social media.

Allied Societies

Association of British Neurologists

Association of Healthcare Technology Providers for Imaging, Radiotherapy and Care

Association of the British Pharmaceutical Industry (ABPI)

British Neuropathological Society

British Neuroscience Association

British Society of Neuroradiologists

European Association of Neuro-Oncology (EANO)

European Association for Cancer Research

European Society for Medical Oncology

European Society for Neuroradiology

European Union of Medical Specialists (Union Européenne des Médecins Spécialistes)

Radiation Therapy Oncology Group

International Society for Paediatric Oncology (Société Internationale d’Oncologie Pédiatrique,  SIOP)

Society for Neuro-Oncology

Society for British Neurological Surgeons

UK BioIndustry Association

Government and Regulatory Bodies

European Medicines Agency (EMA)

Medicines & Healthcare products Regulatory Agency (MHRA)

NHS Clinical Commissioning Group

National Institute for Health and Care Excellence (NICE)

World Health Organisation International Agency for Research on Cancer

Statistics

Cancer Research UK

EUROCARE

National Cancer Intelligence Network (NCIN) Central Nervous System Cancers

NHS

Translational and Clinical Research

European Organisation for Research and Treatment of Cancer (EORTC) Brain Tumour Group

Experimental Cancer Medicine Centres (ECMC)

National Cancer Research Institute Brain Tumour Clinical Studies Group

National Cancer Research Institute Children’s Cancer & Leukaemia Clinical Studies Group

National Cancer Research Institute Clinical & Translational Radiotherapy Research Working Group (CTRad)

National Institute for Health Research (NIHR)

Clinical Trial Portals

Cancer Research UK

EU Clinical Trials Register website EudraCT

International Standard Randomised Controlled Trial Number Register (The ISRCTN Registry), Biomed Central Ltd, part of Springer Science+Business Media

Musella’s Clinical Trials for Brain Tumors

UK National Institute for Health Research (NIHR) Clinical Trials Gateway (CTG)

UK NCRI NIHR Clinical Research Network portfolio

US NIH Clinical Trials.gov database

WHO International Clinical Trials Registry Platform (ICTRP)

Educational and News Alerts

(including those where individuals can sign up for regular e Bulletins)

BrainLife

eCancer

Practice Update Brain Cancer Centre of Excellence

Practice Update

Patient organisation links

This section of the BNOS website is intended for patient organisations to promote new reports, campaigns, meetings of/for healthcare professionals, educational materials, journal publications etc to medical and allied professionals and researchers. It is not intended for news that is more appropriate for patients and carers. Information for inclusion should be sent to administrator@bnos.org.uk

Brain Tumour Tissue Bank

Brainstrust are campaigning to increase the number of people consenting to donate their resected brain tumour tissue to research.  Helen Bulbeck, Director of Services and Policy at brainstrust, and member of Independent Cancer Patients Voice, puts forth what needs to be done in the section ‘Brain Tumour Tissue Bank: The brainstrust Proposal’.  The full article: “The Importance of Quality Patient Advocacy to Biobanks: A Lay Perspective from Independent Cancer Patients Voice (ICPV), Based in the United Kingdom” can be found in the journals below:

www.ncbi.nlm.nih.gov/pubmed/26420622

www.springer.com/us/book/9783319205786

www.amazon.com/Biobanking-Century-Advances-Experimental-Medicine/dp/3319205781

There is also considerable information for clinicians including pathways and sample forms to be used when obtaining consent available on their website www.brainstrust.co.uk

Brain tumour research e-petition prompts government action

Following an e-petition started by Maria Lester, with the support of Brain Tumour Research, the House of Commons Petitions Committee decided to look into the issue of funding for brain cancer research. A formal hearing was held on 3 November more information.

All-Party Parliamentary Group (APPG) on Brain Tumours

The APPG on Brain Tumours will meet on Wednesday 9 December, from 4-6pm, in Westminster to discuss the new five year Independent Cancer Taskforce Strategy and how it will improve survival, quality of life and services for people affected by a brain tumour. In attendance will be Sean Duffy, the National Clinical Director for Cancer at NHS England, who will provide an overview of the strategy and plans for its implementation.

The Giles’ Trust

Former Warwickshire and England cricketer Ashley Giles, together with his wife, Stine, have helped launch a brand new fund to support brain tumour care at the Queen Elizabeth Hospital Birmingham.